October 2007


<img src=”DSCN2385” alt=”" />
description: A photo of me, wearing my sleeping son in a leopard-print sling, handing out flyers at a recent nurse-in… actually the nurse-in so publically scorned by Bill Maher. Douchebag.

I am so utterly beyond thrilled to have found the forums at The Baby Wearer. Particularly because there’s a forum that focuses on wearing one’s baby when one has a chronic illness or debilitating condition (or when the baby does). Apparently, if people can be complete jackasses when they see a relatively young woman park a car with a handicapped placard, that’s nothing to their response when said woman slings a baby onto her back.

The cultural bias in favor of strollers ignores the fact that toting around one of those behemoths would be the end of many a sickie mom. Nevermind the positive aspects of babywearing, which I strongly believe in–it simply wouldn’t work for me to tote around a Bugaboo or MacLaren. My hands don’t grip well enough, I de-stabilize the thing by leaning on it, and mostly because I travel light. Don’t even get me started on one of those bucket seats. I couldn’t even fathom lugging around something like that before I got sick.

Now, my new favorite pains in the ass might be the people who feel that it isn’t “safe” for me to wear the baby. I’d be more inclined to listen to these types if their objection weren’t to the baby’s being safely nestled in the sling, because it’s true that sometimes I feel a little off about carrying the baby, due to arm weakness. Which is why the sling is such a joy. And seriously, if I’m not well enough to sling him, it generally means I’m not well enough to be up and about with him anyway. And supposing the gait problems were to flare up again, well, then I suppose I’d wear the baby in the wheelchair… it’s a pretty common solution to that particular problem, really.

Of course, I’m persona non grata among able-bodied moms who find babywearing “too hard,” because my very existence is a reproach. I have a debilitating, fatiguing illness, and find babywearing as easy as eating. Which basically means that these women didn’t really want to babywear, very much*. It’s like a woman I know, who has lupus and who also works out to a point of dieseled physical perfection that makes me question my sexuality. I don’t claim to know her whole constellation of reasons for working out, but I’m pretty sure that one of them is simply: because she still can. Lupus is a bitch. I’m sure when people moan about how they’d go to the gym if they weren’t feeling so crappy after their long day at work, they don’t have lupus in mind. And yet. Somehow she manages, and probably couldn’t do without it.

Baby care with MS is like that, in general. I couldn’t do otherwise, and the questioning about whether I don’t find nursing/babywearing/nighttime parenting stuff “too tiring” aren’t really relevant to my reality–if you want to help, help me do laundry or something, but please don’t lecture me about how I should be parenting in order to be easy on myself. I am. I just wore the baby through my most recent flare-up, and didn’t feel like a martyr. I do the best I can with what I still have, and I don’t feel I have to give that up.

* Should a close friend who reads my blog think that this is about her, it isn’t. You’ve never given me grief about babywearing, and you’re too hard on yourself in general. You taught me how to use a wrap. You’re lovely.

Asylum Street Spankers-Magnetic Yellow Ribbon

Can I tell you something?

I thought I was wrapped up with you before. Really. But this whole dad thing you’re doing? It’s got me completely in love with you all over again.

Just wanted to let you know that.

The baptism was held in our university church, and our wonderful professor-advisor-priest-friend presided. He was wonderful–the gospel reading was the story of Nicodemus from John’s gospel which is so utterly perfect for a baptism that my friend Catherine asked if we’d had that in mind when we named the baby. Also, he took the opportunity to speak strongly against consumerism. Best of all, he included my daughter in almost everything, along with my husband and I, and Nico’s godparents. Very, very nice.

We’re pleased as punch with how it went–my first infant baptism, as my daughter wasn’t baptized until she was seven. It does make for a nice official “here we are as a Family” sort of a thing.

Perusing the archives of Phoebe’s blog, which is one of the few things in the world that might actually make me want to have more children if I weren’t so God-awful terrified of transition and utterly crippled by pregnancy, I came across this utterly dorky, delightful quiz.

I had to. And so… as I suspected:

Your results:
You are River (Stowaway)

























River (Stowaway)
75%
Dr. Simon Tam (Ship Medic)
70%
Derrial Book (Shepherd)
65%
Zoe Washburne (Second-in-command)
60%
Inara Serra (Companion)
55%
Kaylee Frye (Ship Mechanic)
55%
Wash (Ship Pilot)
55%
Alliance
50%
Malcolm Reynolds (Captain)
40%
A Reaver (Cannibal)
35%
Jayne Cobb (Mercenary)
15%
Even though you may have some personality problems,
(most likely due to being too smart
and/or from experiments done on you),
you are extremely talented and loved.


Click here to take the “Which Serenity character am I?” quiz…

Updates! A lot has changed.

1. My health.
Short version? Is amazing. My first genuine, honest-to-Pete remission since diagnosis. My husband’s and my nagging fear that I actually have progressive MS seems to not be the case (yet), and I’d gotten so used to feeling like a cadaver that I hardly know what to do with myself. Hot damn. Relapsing-remitting MS. How sexy.

Just after giving birth, I began taking Copaxone injections daily. I hate them and they suck and I have huge red bumps and then big dents, especially in my thighs, but for whatever reason, something seems to be working.

I’m also getting monthly IVIG infusions. Once a month, a really awesome visiting nurse shows up and hooks me up to an IV for about six hours. The first time, I had a nasty allergic reaction. The second, I took so much pre-emptive Benadryl that both my nursing child and I sank into coma-like sleep for the rest of the day.

These things seem to be doing their job. I can walk, for a start. Not only can I walk, but I can walk in heels–if I’m careful, of course, to bring a pair of flip-flops or sneakers along in my bag. I also seem to have nearly enough energy to keep up with these kids. I can think, meaning I can write a paper or have a conversation… lovely. Best of all, I am not having crippling, constant, can’t-lift-a-pen fatigue.

Okay, yes yes yes, I still have pain syndrome, numbness and tingling, but those can be worked through.

2. My kids.
Two of them now. Wow.

Well for a start, we had the littly guy baptized, which was no small feat but rather a Big Italo-Irish Deal of a christening party. Quite a gorgeous and lovely event, occasionally fraught with hilarity (my ersatz-Hindu-pantheist mother who insists on receiving communion). We had a wonderful party at my in-laws, and a ton of gorgeous food… I’m thankful to my mother-in-law, and will have to invite her to the small family gathering we’re having after we bring him to hatsumairi next year (in Shin Buddhism, and I beieve a few other traditions, this is when infants are presented to the Buddha and welcomed by the community).

I just had to include the above photo of the baptism day, because… again… high heels. I’m such a little shit, but seriously? I don’t have very good feelings about my long term prognosis, walking-wise. It’s the first thing to go in a pinch. Thus, I’m going to revel and gloat while I can. Feel free to roll your eyes.

In other news, my daughter (the one I don’t write much about due to my own remembered adolescent sensitivity to the adult invasion-of-privacy tactics used by my mother), my husband, my ex-husband (daughter’s father), and I have decided that starting monday she will be homeschooled. Wish us all luck, we’re full of great ideas but a little nervous.

3. My Academic Life
…is no longer “on hold.” As in, I’m working, and writing, and looking at grad school programs, as is my husband. Thus, this blog will (as I’m sure you’ve all noticed) be sporadically (if devotedly) updated for the forseeable future.